Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world
Rogers, Simon N. ; Alvear, Alvaro ; Anesi, Alexandre ; Babin, Emmanuel ; Balik, Ali ; Batstone, Martin ; Brockmeyer, Phillipp ; Carrasco, Claudia Celedon et al.
Chien, Chih‐Yen ; Chirila, Magdalena ; Dholam, Kanchan P. ; Doss, Jennifer G. ; Finizia, Caterina ; Ghani, Wan M. Nabilah ; Gurav, Sandeep V. ; Kadir, Kathreena ; Kolator, Mateusz ; Lima, Roberto ; Lin, Yu‐Tsai ; Nhongo, Simon ; Ozdemir‐Karatas, Meltem ; Peker, Kadriye ; Pesic, Zoran ; Ransy, Pierre ; Santos, Izabella ; Schliephake, Henning ; Shah, Ketan ; Souza, Fernanda ; Sunil, Geethu ; Thankappan, Krishnakumar ; Ehrsson, Ylva Tiblom ; Tiple, Cristina ; Tuomi, Lisa ; Valerini, Sara ; Lara, Pablo Vasquez ; Zatoński, Tomasz ; Lowe, Derek
Citable Link (URL):http://resolver.sub.uni-goettingen.de/purl?gs-1/17129
BACKGROUND: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow-up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). METHODS: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. RESULTS: There were 2136 patients with a median total number of PCI items selected of 5 (2-10). "Fear of the cancer returning" (39%) and "dry mouth" (37%) were most common. Twenty-five percent (524) reported less than good QOL. CONCLUSION: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case-mix variables. There was a strong progressive association between the number of PCI items and QOL.